This story was originally published on April 18, 2000. Return to table of contents. Read next sample. |
Reiman finds ways to turn changes into chances for growth By Bethany Broadwell, iCan.com staff writer
Name: Mark Reiman Greatest accomplishment: "If I am a good husband, father and friend, that is my greatest accomplishment," Reiman said. Role models: Jesus Christ for his unconditional love and his perfect trust in the wisdom and love of God; Reiman's mom, for her unconditional love, support and acceptance; and Oprah Winfrey for her courage and confidence to use her time, talents and resources to help people discover the best in themselves and others. Role models with disabilities: Reiman respects several people with ALS each for their individuality. Lou Gehrig is one of his role models because he was a physically tough, extremely competitive, genuinely good man able to appreciate and articulate the great blessings of his life in the face of tremendous personal disappointment and challenge. Other role models include Stephen Hawking, an eminent scientist from England; Dale O'Reilley, a writer/editor living in New Jersey; and David Jayne, a Georgia man who runs a list-serve type bulletin board for the ALS community. Each is coping with the tremendous physical, emotional and spiritual challenges of ALS, and continuing a life of vision, purpose and great contributions to the world.
Diagnosis changes his life Most people with ALS are typically given a life expectancy of two to five years after diagnosis. But nine years later, Reiman is still around yet he faces unrelenting physical challenges. His arms and hands are the most significantly impaired, making tasks like dressing himself, cutting food and typing difficult. In 1998, Reiman retired with a disability from his teaching position at the Evergreen Middle School in Everett, Wash. "It is very much like being buried alive," he said of his experience with ALS. "But rather than being entombed under the ground, we are literally entombed -- buried alive -- inside our own bodies." This kind of change may seem insurmountable to many, but Reiman has found ways to turn his changes into chances -- chances for growth.
Taking chances and challenges Reiman said his most challenging experience with his ALS is trying to live every day in a manner that defeats fear and regret. "Right now, I believe I have a pretty good handle on it," he said. Then, he compares fear and regret to the mythical Medusa who was difficult to kill. "True love is the only thing more powerful than fear, and I'm working on living that every day," Reiman said. Loving life for Reiman apparently entails pursuing goals and achieving them. In 1998, he became the first person to sing the national anthem in all 30 of the major league baseball parks in one season. This "Season of Hope" tour was particularly important to Reiman because it was an effort to heighten public awareness about ALS. "When I finished the national anthem in Dodger Stadium, the 30th and last ballpark on the tour, I felt a little like Charles Lindbergh may have felt … doing something that no one had ever done before," Reiman said. More than a feeling of pride, Reiman is grateful to have been given such an opportunity. "I was very thankful for the people who had made it possible, and hopeful that what we had set out to do and eventually accomplished would truly help others see greater possibilities in their own lives," he said.
Putting goals, ambitions in priority He also organized a two-day, 80- to 90-mile bicycle tour called the Skagit Valley ALS Bike Classic to raise money and heighten awareness about ALS and bring greater support to people living with the condition. The August event raised more than $55,000 with riders from Washington, Idaho, Oregon, California and Colorado taking part. "A great time was had by all!" Reiman said, who already has plans to repeat the event Aug. 11-12, 2001. "Our goal is 200 riders and $100,000 -- all having the bicycling time of their lives and really making a difference for others at the same time," Reiman said. Both of these goals are important to him, but he has prioritized his ambitions. "My most important and basic goal is to help people discover their own natural, powerful connection with God and to see that the only thing God really calls us to do is to truly, authentically love every piece of life on earth," Reiman said. When all is complete, Reiman said he hopes he is remembered as a good husband, father, friend and someone who helped people discover the best in themselves and others. He is someone who loves life, believes in having fun and living as closely as he can to his own wisdom.
Reiman's words of wisdom
On the book, "Tuesdays with Morrie": "In terms of the physical devastation of ALS, yes, he was a perfect example of ALS. Emotionally and spiritually, Morrie was a very remarkable human being -- an 'advanced' soul." |