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This story was originally published on April 18, 2000.

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Reiman finds ways to turn changes into chances for growth
By Bethany Broadwell, iCan.com staff writer

Name: Mark Reiman
Age/birth date: 46, born Dec. 18, 1953
Disability: Reiman has amyotrophic lateral sclerosis (ALS), which is commonly known as Lou Gehrig's disease. It is a terminal, incurable illness that causes general weakness with muscle cramps and twitches.
Family: Reiman has been married to Julie since May 19, 1979. The couple has twins, Josh and Sarah, who will be 20 on Dec. 26.
Employment: After 15 years of service, Reiman is retired with a disability from his teaching position at Evergreen Middle School in Everett, Wash. In 1995, he co-founded Embrace The Rain Music and has produced two CDs of his music. Reiman also is co-founder and editor-in-chief of Incredible People magazine. And he devotes a considerable amount of his energy to increasing public awareness about ALS.
Home: Everett, Wash., 25 miles north of Seattle. He is originally from Mt. Vernon, Wash., which used to be a small dairy and farming town 60 miles south of the Canadian border.
Hobbies: Bicycling; watching spectator sports, particularly high school and college wrestling and baseball; listening to "quality" music and watching movies.
Favorite quotes: Depending on his audience, Reiman cites:

  • "Every problem holds a gift for you in its hands." -- Richard Bach, American author
  • "Nothing splendid has ever been achieved except by those who dared believe that something inside them was superior to circumstance." -- Bruce Barton, American author, advertising executive
  • "The greatest discovery of my lifetime is that we can change our lives by changing our attitudes." -- William James, American philosopher and psychologist
  • "I'd give my right arm to be ambidextrous." -- Yogi Berra, baseball player
  • "Beer is proof that God loves us and wants us to be happy." -- Benjamin Franklin, American inventor, publisher and diplomat
    Greatest accomplishment: "If I am a good husband, father and friend, that is my greatest accomplishment," Reiman said.
    Role models: Jesus Christ for his unconditional love and his perfect trust in the wisdom and love of God; Reiman's mom, for her unconditional love, support and acceptance; and Oprah Winfrey for her courage and confidence to use her time, talents and resources to help people discover the best in themselves and others.
    Role models with disabilities: Reiman respects several people with ALS each for their individuality. Lou Gehrig is one of his role models because he was a physically tough, extremely competitive, genuinely good man able to appreciate and articulate the great blessings of his life in the face of tremendous personal disappointment and challenge. Other role models include Stephen Hawking, an eminent scientist from England; Dale O'Reilley, a writer/editor living in New Jersey; and David Jayne, a Georgia man who runs a list-serve type bulletin board for the ALS community. Each is coping with the tremendous physical, emotional and spiritual challenges of ALS, and continuing a life of vision, purpose and great contributions to the world.

    Diagnosis changes his life
    In 1991, 37-year-old Mark Reiman received a diagnosis that would drastically change his and his family's life. He was told he had amyotrophic lateral sclerosis or ALS, commonly known as Lou Gehrig's disease after the baseball player who in 1939 abruptly retired from the game after being diagnosed with ALS. But Reiman knows the diagnosis of ALS is not a game.

    Most people with ALS are typically given a life expectancy of two to five years after diagnosis. But nine years later, Reiman is still around yet he faces unrelenting physical challenges. His arms and hands are the most significantly impaired, making tasks like dressing himself, cutting food and typing difficult. In 1998, Reiman retired with a disability from his teaching position at the Evergreen Middle School in Everett, Wash.

    "It is very much like being buried alive," he said of his experience with ALS. "But rather than being entombed under the ground, we are literally entombed -- buried alive -- inside our own bodies." This kind of change may seem insurmountable to many, but Reiman has found ways to turn his changes into chances -- chances for growth.

    Taking chances and challenges
    Since his retirement from teaching, Reiman has written a book, "Through the Perilous Fight: Living a Life of Challenge," co-founded and became editor-in-chief of Incredible People magazine and spoken to audiences across the United States about turning life challenges into gifts and opportunities.

    Reiman said his most challenging experience with his ALS is trying to live every day in a manner that defeats fear and regret. "Right now, I believe I have a pretty good handle on it," he said. Then, he compares fear and regret to the mythical Medusa who was difficult to kill. "True love is the only thing more powerful than fear, and I'm working on living that every day," Reiman said.

    Loving life for Reiman apparently entails pursuing goals and achieving them. In 1998, he became the first person to sing the national anthem in all 30 of the major league baseball parks in one season. This "Season of Hope" tour was particularly important to Reiman because it was an effort to heighten public awareness about ALS. "When I finished the national anthem in Dodger Stadium, the 30th and last ballpark on the tour, I felt a little like Charles Lindbergh may have felt … doing something that no one had ever done before," Reiman said.

    More than a feeling of pride, Reiman is grateful to have been given such an opportunity. "I was very thankful for the people who had made it possible, and hopeful that what we had set out to do and eventually accomplished would truly help others see greater possibilities in their own lives," he said.

    Putting goals, ambitions in priority
    Reiman's vitality is still strong enough to be channeled in new directions. He has multiple goals defined that reflect his diverging interests. Reiman works to make every issue of his Incredible People magazine "the very best, most compelling, enjoyable, widely read, inspirational e-zine on the Internet" and hopes it will be developed into a TV show.

    He also organized a two-day, 80- to 90-mile bicycle tour called the Skagit Valley ALS Bike Classic to raise money and heighten awareness about ALS and bring greater support to people living with the condition. The August event raised more than $55,000 with riders from Washington, Idaho, Oregon, California and Colorado taking part. "A great time was had by all!" Reiman said, who already has plans to repeat the event Aug. 11-12, 2001. "Our goal is 200 riders and $100,000 -- all having the bicycling time of their lives and really making a difference for others at the same time," Reiman said.

    Both of these goals are important to him, but he has prioritized his ambitions. "My most important and basic goal is to help people discover their own natural, powerful connection with God and to see that the only thing God really calls us to do is to truly, authentically love every piece of life on earth," Reiman said.

    When all is complete, Reiman said he hopes he is remembered as a good husband, father, friend and someone who helped people discover the best in themselves and others. He is someone who loves life, believes in having fun and living as closely as he can to his own wisdom.

    Reiman's words of wisdom
    "I wake up every morning knowing that each day is a truly precious gift, a gift that I am not owed. I know that my purpose for each day is:
    1. love God with all my heart and love my neighbor;
    2. be the very best person I know how to be;
    3. help in some way at least one person whose path my own life crosses."

    On the book, "Tuesdays with Morrie": "In terms of the physical devastation of ALS, yes, he was a perfect example of ALS. Emotionally and spiritually, Morrie was a very remarkable human being -- an 'advanced' soul."
    "I try to live every day in a manner that defeats fear and regret."
    "True love is the only thing more powerful than fear and I'm working on living that every day."
    On his feelings for music: "Music is a very much a medium of the mind and the spirit. While I greatly miss being able to physically compose, direct and perform, music provides a connection to the spirit of others and to our own spirit that nothing else does. I also feel satisfied and grateful that the music I have written and performed is a gift that will live on long after I do-that will help bring that same experience of spirit and truth to others."